Isaac has been stable. I'm never going to say anything better than that. It seems that when I do, it turns in a different direction. After being on a course of antibiotics and getting breathing treatments, let's just say that Isaac is "headed in the right direction. You wouldn't have even known that he had neuro surgery a week ago...even the next day, he was awake and looking around. He is still intubated and only on two drips now. They have weaned him off of the Fentanyl(narcotic/sedative drip) but if he shows signs of withdrawals then they'll give him Methadone. So, he's on milrinone and very low dose heparin (which they will change to aspirin soon). He's on some of the lowest settings on the ventilator and working towards extubation this weekend or early next week. Again, no promises! Currently, he is still inactive on the transplant list. His last dose of antibiotics is tomorrow but we still have to wait for neurology to give the transplant team the go ahead to put him back to active. This is because the clot in his head could've been due to the fact that he was on high dose heparin (for the clots in his legs). So if they were to tell the transplant team to activate him and he was to get a new heart in the next couple of days, the clot in his brain could get bigger from all the heparin that they'd have to give during and after surgery. Personally, I wouldn't like to rush it, especially because the clot in his head is already dangerous, but Ernest would like him to be put back on pretty quickly.
So...sorry it took so long for me to update. We were just taking it day by day watching him closely. This was probably one of the hardest last couple of days. Wondering, hoping, and praying....
Eli went back to Midland last Sunday. It was really nice having him here for the whole week last week. He put us back and gave us a taste of the real world for awhile.
Here is Eli leaving us while sporting his new spongebob suitcase...thanks Jaime, Lulu, Kaylee, Jamison, and Zach
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My Identity
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I'm at a weird place in life.
I've been a stay at home mom for 5 years now. That is 5 years of giving of
myself to my children and my family. It's been the...
9 years ago
Oh my goodness!! I am so behind. I can't believe what is going on. Sheesh! That would be a difficult spot being back on the list. I hope that he heals quickly so he can be ready and strong for his transplant.
ReplyDeleteHang in there! Someday you will be the one commenting on another heart mommies blog who is going through what you are.
Heart Hugs!!
Mimi