ARE YOU READY TO GO HOME?

A question we were asked on Monday. Of course we are ready!!! Isaac's transplant doc said that Thursday would be the goal but would probably end up being Friday. So us and Isaac had to go for many tests and training before we could take him home to the apartment. Isaac had to have much bloodwork done, he had to have an ultrasound of his veins, an xray, a swallow study, and MRI, and a hearing test. The bloodwork was to check his medicine levels and the ultrasound came out fine showing no other clots. Since Isaac still has paralysis of his vocal cords, a swallow study was done to see what would be safe to give him by mouth. It turns out that we cannot give him thin liquids by mouth, but is safe with baby food or honey consistency liquid. So, we'll most likely not be able to practice with a bottle but we can practice with baby food. He passed the hearing test and the MRI was done to recheck the clot in his head (which looks like it is resolving). Ernest and I had training on administering his medicines and how to use his g-tube and pump. After his last cath procedure, the doctor also warned us that he would have to be on an injectible blood thinner. Ugghhh...we were dreading it....but we learned how to give him his shots two times a day. We was finished with everything by noon yesterday but we still could not get discharged because one of the medicine levels was too high, so we had to wait for his bloodwork this morning. My brother was able to bring Eli for the holiday weekend. He got here at 5 this morning and is here waiting patiently for the doctors to discharge us so he can "take his brother home." As soon as they give us any word of "discharged" we are out of here until next Thursday when Isaac will have his first clinic. We'll take many pictures and post later today. Pray for a safe 7 minute trip home.