Better Days are Coming...

Sorry for such a late update. I guess Texas Children's internet was down this week. This is the first day that internet has been up since Wednesday.

So, Isaac has been doing a whole lot better. He's looking more and more like himself everyday and more so today. Its kinda sad that he's more awake now and because he's still intubated, they want to keep him calm and sedated. I really hate when they "have" to give him sedation. I tell my husband that its only because they don't want to take the time to sit there with him, talk to him, and calm him down. He's only mad because the breathing tube is agitating. Since he has been doing so great, they have finally been able to wean off of the vent support. Hopefully, today he will be doing volume support (exercise with his lungs on his own) and be extubated within the next few days. We can't wait!!! Its been a whole two weeks, and I think we took holding him for granted now that we can't. There hasn't been too much that changed since my last post. Although, the doctors have said that Isaac may have been having problems recovering because of a yeast infection that they found he had. Its not really certain though. Doctors' first instinct is always that its a cause of his already bad heart function. We knew it wasn't the whole time...it's always been an underlying problem that makes his heart function worse..whether its dehydration, staph infections, urinary tract infections. It's all part of being at the hospital. I mean the heart function is not necessarily worse but all of these things will just make his heart try to work harder. So, its been a busy two weeks, and he's finally really progressing. We're really hoping that after he gets extubated, that they'll move him down to NICU. Its so much easier to see him down there and because they usually don't have any need for sedation. Let's not get our hopes up and count our chickens before they hatch. We'll just take it one day at a time. No new pictures of Isaac yet, but he IS 2 months old today. I really don't want to take many pictures while he's intubated. It's heart-wrenching to see him uncomfortable.

On a great note though, my mother-in-law and sister-in-law brought Eli with them when they came this weekend. We were so ready for him to come back and planned a short fishing trip. For months now, Eli has been asking us to buy him the Rocket fishing rod ($29). So, we finally decided to buy him one before he got here and come to find out that the fishing rod rang up for $10. We couldn't believe it. I don't know if it was an error on their part, but we didn't hesitate to go in and buy another one. Yesterday morning, we took a short 20 minute trip to the La Porte Beach to go "fishing." Of course, we didn't catch anything but Eli had a great time. This boy is too smart for us. The fishing rod was a little difficult to figure out and manuevre, but he figured it out in no time. I'm posting a few pictures but oh yeah, when we started settling on a spot at the beach, a snake washed up. Ughh...scary!!





Daddy teaching Eli how to fish with a real fishing rod before the rod broke into pieces (cheap pole) after casting it out.



and Eli just being ELI.....







OH YEAH...I forgot...Eli is staying with us for a little while. I had planned on asking him if he wanted to stay with us for a little while but didn't imagine that he really wanted to. We asked him and he really had not hesitation. So, for at least a week, I'll be spending morning and afternoon with Eli and then after Ernest gets out of work, we'll be heading to the hospital. As bad as I feel for leaving Isaac alone at the hospital most of the day, I know Eli needs to be with us too sometimes. We'll do a week and see how that goes.

Please keep praying for Isaac's new heart. We can't wait to bring him home!!!!



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