A Little Better Every Day

So, Isaacs Cath doctor scared us yesterday when he said that because Isaac has been having problems these past few days that he was scheduled to have a diagnostic catheter procedure today. Another one!? He said "this won't be an interventional cath, but just one to get more information on whether Isaac will need surgery again." But, he also told us that it was tentatively scheduled for today unless Isaac showed improvement overnight. We went home dreading another cath that he would have to recover from.... We got here at "0600" this morning and to our surprise we start talking to Isaac and HE OPENS HIS EYES! We were ecstatic...that means he's getting better. So, we talked to him while we were waiting on doctors to consent us for the procedure. Finally, they came in and said the cath was cancelled. Two doctors came in to explain to us (at different times) that they cancelled it because in their discussion about Isaac, they feel that this procedure may not even help him but might just worsen the recovery process. What scares me about this is that there's not much more that can be done for Isaac at this point, unless its something that medicine will help. With the cath that was going to be done today, it was said that they could get more information as to whether he needed his pulmonary bands tightened more. In their discussion though, his surgeon said that the bands could probably not get tightened anymore without damaging the arteries. In our opinion, we still think that he just needed help with getting rid of the extra fluid and more recovery time. It looks like we might be right!!!! He's a fighter and our champ!!!! He's looking more and more like Isaac everyday. He's still on the breathing tube and all the drips he was one two days ago. No other major changes, but he is doing better at breathing on his own. We're looking forward to maybe extubate him this weekend unless he does it himself...(gasp)! He's starting to move more and be awake longer even with sedatives. Good boy....you show them!!
Now, even though it may sound scary that not much else can be done for Isaac from a surgery standpoint, we had a good talk with our Transplant coordinator. We had many questions floating around in our heads, and especially this week with Isaac scaring us half to death. All our questions were answered and come to find out...she told us that a heart was offered to Isaac two weeks ago... but the transplant team did not feel like it was a "good offer." There's many criteria that TCH has to go by and are very picky about the hearts that are offered to them. We're happy...we don't want them giving him just any heart! They'll know which is the right one for him. But with that, it gave us much hope that at status 1B at least he has gotten an offer. Not too much longer!!! Keep praying...He's listening! God Bless you all that think of Isaac every night.





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